Abstract
The purpose
of this study was to determine which of a variety of demographic,
attitudinal and other background variables impacted upon desired
treatment outcomes among Deaf and Hard of Hearing persons
who had completed treatment at The Minnesota Chemical Dependency
Program for Deaf and Hard of Hearing Individuals (MCDPDHHI).
The research consisted
of a formative evaluation study which utilized client demographic
profiles and a variety of analyses. Tests utilized for this
study included the use of correlations, analysis of variance
for two or more groups, chi squared, step-linear and logistic
regression. The desired results of the study were to make
recommendations which would enhance program effectiveness
and determine the relationship between selected variables
and an array of desired treatment outcomes. Analyses would
also produce data to assist in more accurate tracking of program
outcomes. There would be predictable outcomes isolated as
a result of the analyses. This study was done using internal
data because there are no other programs in the country with
which to make comparisons. It is therefore necessary to analyze
the program and its results in order to determine how to improve
it.
The MCDPDHHI is
a model inpatient treatment program which is hospital based
and receives federal funding from the Center for Substance
Abuse Treatment and the Office for Special Education and Rehabilitation
Services. The information obtained also will impact the deaf
and hard of hearing communities by indicating which program
components contribute to the provision of the most effective
treatment for this population. The research identified program
strengths, weaknesses and omissions and made recommendations
which will enable corrections and improvements to be developed.
Not only is the program itself unique, but there have not
been any previous follow-up studies done on deaf and hard
of hearing individuals who have completed alcohol or drug
treatment. It is important to attempt to determine what treatment
components will start this population on the road to an enhanced
quality of life. This information will be available for use
on a national basis and will assist in the replication of
a model treatment program for deaf and hard of hearing chemically
dependent individuals.
Introduction
There are 43 million
Americans with disabilities. That makes up the largest minority
group in the United States. While the range of their disabilities
may vary, all share an increased risk for alcohol and other
drug abuse. Alcohol and other drug abuse rates for people
with disabilities may range from 15% to 30%(Sparadeo and Gill,
1989; Rasmussen and DeBoer, 1981; Hepner et al., 1981). These
figures are considered above average for all people nationally.
People with disabilities may abuse alcohol and other drugs
for similar reasons as their non-disabled peers but the higher
risk reflects a number of other reasons related to the existence
of a disability. Examples may include: medication use; health
concerns; chronic pain; peer group differences; increased
stress on family life; fewer social supports; enabling of
alcohol and other drug use by others; excess free time; and
lack of access to appropriate alcohol and other drug abuse
prevention resources (Boros, 1981; Buss, A., and Cramer, C.,
1989, de Miranda, J., and Cherry, L., 1989).
Drug and alcohol
dependence have long been major public health concerns for
society as a whole. Conservative estimates by the Alcohol,
Drug Abuse and Mental Health Administration are that more
than 10 million adult Americans or about five percent of the
population are alcoholics, and that another seven million
have alcohol abuse problems. More than 4.5 million adolescents
are thought to have significant problems with alcohol. About
six percent of adults will have problems with drug abuse at
some time in their lives.
Approximately five
percent of the people in the United States cannot voluntarily
control their drinking (McConnell, 1986). Seventy percent
of children aged 12 to 17 have experimented with alcohol and
drugs, while an estimated one-third use or abuse these drugs
regularly (Kapp et. al., 1984).
There are few statistics
available throughout the United States or Canada reporting
the number of deaf and hard of hearing individuals who are
chemically dependent. To date, there have only been two residential
school studies (Isaacs, Buckley & Martin, 1979; Johnson
& Locke, 1978) and one state wide study (Boros, 1981)
estimating the incidence of substance abuse in the deaf population.
Some experts believe that the incidence of alcoholism among
deaf people is at least equal to the hearing population (Boros,
1981; Boros & Sanders, 1977; Isaacs, Buckley, Martin,
1979; Johnson & Locke, 1978; Lane, 1989; Watson, Boros,
Zrimec, 1979) but there have not been large populations of
deaf and hard of hearing individuals sampled. Steitler (1984)
estimated more than one million deaf Americans need substance
abuse counseling while other investigators report incidence
levels ranging from seven percent to twenty percent. Furthermore,
approximately one-fourth to one third of all deaf Americans
with mental health problems suffer from substance abuse (Steitler,
1984). Many think that the true extent of alcohol and drug
abuse with this population is underestimated; however, most
writers believe that the prevalence of abuse in the deaf community
is at least as high as the prevalence of abuse in the hearing
population (Boros, 1981; Dixon, 1987; Ferrell and George,
1984; McCrone, 1982). It has been estimated that one out of
every seven deaf individuals will become alcoholic, compared
to one out of every ten other individuals. There is published
evidence that substance abuse and addiction are up to three
times more common in the disability community than in the
general population (Gorski, 1980; Steitler, 1984; Greer, Roberts
& Jenkins, 1990; Cherry, 1988). One study (Gorski, 1980)
found that up to a third of the disabled individuals applying
for Vocational Rehabilitation Services may be alcoholic. That
would be triple the incidence of alcoholism in the general
population (McCrone, 1991).
There are many
reasons to suspect that drug abuse may be more likely among
deaf people than hearing people (Kozel & Adams, 1986;
McCrone, 1991;). Estimates from the National Council On Alcoholism
suggest that at least 600,000 men and women experience this
dual burden of alcoholism and hearing loss (Kearns,1989).
If U.S. Justice Department (1992, p. 28) figures are correct
about the overall incidence of illicit drug use in the US,
and if deaf people represent half of one percent of the US
population, then there are 3,505 deaf heroin users, 31,915
deaf cocaine users, 5,105 deaf crack users, and 97,745 deaf
marijuana users in the US today (McCrone, 1994).
Over 800,000 people
are in alcohol and drug abuse treatment at any given time
(Robert Wood Johnson Foundation, 1993, p.61). If deaf people
represent half of one percent of the US population, there
should be 4,000 (half of one percent of 800,000) deaf and
hard of hearing people in drug or alcohol treatment on any
given day (McCrone, 1994).
Currently, minimal
research exists related to the incidence of substance abuse
within the deaf and hard of hearing communities. Methods that
have been developed to gather this information within the
hearing communities are often ineffective with this population
for a variety of reasons. Some of these reasons include: 1)
distrust of predominantly hearing researchers; 2) fear of
ostracism and labeling; 3) lack of identification within the
deaf community; 4)inaccessible instruments due to language
limitations; 5) inability to survey this population due to
communication barriers. It is unfortunate that Martha Sabin's
(1988) research indicates that young deaf people still think
of drunkenness as a "sin" or a character weakness.
These kinds of attitudes within the deaf community make it
difficult to advocate for additional chemical dependency services
for this population. The sober segment of the deaf community
may not be interested in advocating for the needs of the addicted
segment of the deaf community (McCrone, 1991). Societal impression
has an impact on the identities of individuals who are members
of minority groups. Deaf children have many risk factors associated
with drug abuse including school failure, low self-esteem,
lack of purpose in school, child abuse and neglect, "doesn't
expect to graduate," " expects to be unemployed,"
and alienation from family (McCrone, 1994).
When problems exist,
treatment also is inaccessible (Sylvester, 1986). Alcohol
and other drug abuse prevention materials frequently do not
take into account the cultural, language, or communication
differences indigenous to people who are deaf or hard of hearing.
There also is concern that people who are deaf attempt to
avoid the additional social stigma associated with an alcohol
and other drug abuse label, thereby making detection of problem
use more difficult (Boros, 1981). There is a complex interaction
among various groups within the deaf community, in the chemical
dependency treatment delivery system, in the educational system
and in the rehabilitation professional community. These varied
participants exacerbate the difficulty of providing effective
services to this population. Knowledge about chemical dependency
is not communicated very well in the deaf community and there
is resistance to and suspicion of service provider relationships.
In an effort to
ease their own pain, well meaning professionals, care givers,
family members and friends often help the individual who is
disabled continue his or her chemical dependence. Through
enabling, the individual who is disabled can continue to escape
both the reality of the disability and the necessity to deal
with it "on an honest emotional level" (Schaschl
& Straw, 1990). Family, friends and other concerned persons
view the disability as a burden and the person who is disabled
as a patient or victim. They encourage use of alcohol or other
drugs believing that this will help the person who is disabled
to socialize, obtain happiness or satisfaction, and perhaps
even feel equal to able bodied people (Schaschl & Straw,
1989).
There are many
problems associated with deaf and hard of hearing substance
abusers. They suffer a severe lack of appropriate services
and support. Language and communication barriers exist between
deaf and hearing populations. There is a lack of adequate
training among professionals within the field of deafness.
As a result, knowledge about chemical dependency is not communicated
very well in the deaf community and there is resistance to
and suspicion of service provider relationships.
Deaf and hard of
hearing people have unique cultural and communication needs
which must be adequately addressed if they are to seek chemical
dependency treatment. There are numerous barriers to treatment
and recovery for persons who are chemically dependent and
deaf or hard of hearing. Seven of these barriers are:
1. Recognition
of a problem - There is a general lack of awareness of
the problem of substance abuse within the deaf community.
This situation is influenced by a lack of appropriate education/prevention
curricula and limited access to recent widespread efforts
to educate people about alcohol and other drugs through the
mass media.
2. Confidentiality
- Traditionally, the deaf community has communicated information
about its members very efficiently through person to person
contacts. This grapevine-like system of communication has
kept deaf people informed of community news and concerns.
But, individuals in treatment often fear that their treatment
experience will become a part of the grapevine information.
3. Lack of Resources
- Few resources along the continuum of substance abuse services
meet the communication and other cultural needs of deaf and
hard of hearing persons. Historically, the array of treatment
services available to hearing individuals has not been accessible
for deaf and hard of hearing people. There is also a lack
of qualified professionals trained in the areas of both substance
abuse and deafness.
4. Enabling
- The tendency of family members, friends and even professionals
to take care of and protect individuals who are "disabled'
or "handicapped" is often played out with deaf and
hard of hearing persons. The addition of substance abuse only
exacerbates this problem. Often this results in the deaf or
hard of hearing individual not being held accountable for
his/her behavior.
5. Funding Concerns
- Specialized programming to meet the needs of deaf and hard
of hearing persons is costly due to the need for specially
trained staff, travel costs and the depth and breadth of the
client's needs. The process of accessing funding sources may
act as a barrier itself to deaf and hard of hearing persons.
6. Lack of Support
in Recovery - Disengaging from old friends may be especially
difficult for people who are deaf or hard of hearing. Small
numbers of deaf and hard of hearing people within the community,
many of whom use mood altering chemicals, leave the recovering
person with few socializing opportunities. The relatively
small number of recovering deaf role models also results in
a lack of a sense of support.
7. Communication
- In order to access treatment services, the deaf or hard
of hearing person must be able to access communication. For
many, accessing spoken and written language is a struggle.
Most deaf people depend on American Sign Language (ASL), which
is a visual language with its own set of rules (Stokoe, 1981).
Some treatment programs have attempted to resolve the communication
issue by using a sign language interpreter and by integrating
deaf clients into the regular treatment process. Often, the
interpreter is provided only for formal programming and the
deaf person misses out on communicating with other patients
at other times during the day or evening such as free time
or meal time. Many times there is a shortage of available
interpreters so communication is not provided to the client.
Individuals who
are chemically dependent and deaf or hard of hearing are not
receiving appropriate treatment to deal with their addiction.
Substance abuse problems are often viewed as secondary disabilities
by the rehabilitation worker (Benshoff, 1990). The communication
barriers resulting from deafness make it convenient for chemically
dependent individuals to deny, ignore or defend their lack
of awareness of drug or alcohol-related problems.
Introduction to
the Minnesota Chemical Dependency Program for Deaf and Hard
of Hearing Individuals (MCDPDHHI)
The Minnesota Chemical
Dependency Program for Deaf and Hard of Hearing Individuals
(MCDPDHHI) is a specialized program designed to meet the communication
and cultural needs of deaf and hard of hearing persons in
chemical dependency treatment. The program utilizes a twelve
step model with behavioral components and is the recipient
of a training grant from the Office for Special Education
and Rehabilitation Services (OSERS) as well as a Critical
Populations Grant from the Center for Substance Abuse Treatment(CSAT).
The MCDPDHHI was initially awarded funds from CSAT in September,
1990, and was awarded two additional years of continuation
funding in September, 1993. The grant funds enable program
staff to provide outreach and training, to modify and develop
materials as well as to provide treatment to deaf and hard
of hearing individuals. Each client is viewed as unique and
staff strives to meet treatment needs in an individualized
and therapeutic manner. Attention is given to client diversity
with respect to ethnic background, education, socialization,
cultural identity, family history and mental health status.
An additional goal is to provide the necessary tools for replication
of this model program nationally. While treatment is important
in intervening in substance abuse, real recovery work begins
after treatment. A part of that work involves the recognition
of the prevention of relapse. Many variables can influence
relapse but the lack of accessible resources can be a major
factor for deaf and hard of hearing people. Specialized materials
which take into account the communication and cultural needs
of deaf and hard of hearing persons can positively contribute
to the process of recovery. Support services such as aftercare,
vocational rehabilitation and self help groups can help to
encourage ongoing pursuit of a recovering lifestyle but only
if they can be accessed by the deaf or hard of hearing person.
Substance abuse treatment services that meet the communication
and cultural needs of deaf and hard of hearing individuals
are not enough. A continuum of education, prevention, treatment
and aftercare services can help to ensure deaf and hard of
hearing people the opportunity for recovery.
The MCDPDHHI is
comprised of a highly trained staff who provide a full range
of treatment services. The treatment team includes a medical
director, a program director, certified chemical dependency
counselors, interpreters, an outreach counselor, a family
counselor, a licensed teacher of the deaf, a chaplain, an
occupational therapist, a recreational therapist, nurses,
a case manager, unit assistants and a program secretary. Staff
are fluent in sign language as well as knowledgeable and sensitive
to deaf culture. Program offerings include individual and
group therapy, school programming, lectures, occupational
therapy, spirituality group, recreational therapy, grief group,
men's/women's groups, participation in twelve step groups,
comprehensive assessment services and aftercare planning.
As a part of a major metropolitan medical center, the MCDPDHHI
also offers a full range of physical and mental health services.
Thousands of deaf
and hard of hearing individuals are suffering personal and
economic loss because they have not been given access to appropriate
drug and alcohol rehabilitation programs. The cost to taxpayers
within our country in lost wages and expensive support systems
is staggering. Ways must be found to make these individuals
productive citizens. Treatment programs such as the MCDPDHHI
not only have to be proved adequate in themselves but must
be replicated throughout the country so as to serve this population
adequately.
The majority of
clients who have entered the MCDPDHHI report use beginning
at approximately ten years of age. Since opening the MCDPDHHI
in March, 1989 to August, 1996, 516 clients have been served.
Of those served, less than 20 have been under the age of 18
even though use was reported to begin much earlier. A number
of the clients admitted to treatment report having been stopped
by the police while intoxicated but received no consequences.
Many of these deaf individuals were not arrested or issued
citations because of their deafness. Because of communication
barriers, law enforcement authorities often choose to ignore
or overlook these legal infringements. This is a disservice
for deaf and hard of hearing individuals who ultimately receive
few if any consequences compared to their hearing peers.
Purpose of the Study
This study investigated
the unique treatment program at MCDPDHHI by determining which
variables contribute to the success or failure of deaf and
hard of hearing clients admitted into the Program for treatment.
The research identified program strengths, weaknesses and
omissions and made recommendations which will enable corrections
and improvements to be made. The purpose of this study was
to determine which of a variety of demographic, attitudinal
and other background variables impacted upon desired treatment
outcomes among deaf and hard of hearing persons who had completed
treatment at The MCDPDHHI. In addition, the information thus
obtained will impact the larger deaf and hard of hearing communities
by indicating which program components contribute to the provision
of the most effective treatment for this population. This
information will be available for use on a national basis
and will assist in replication of a model treatment program
for deaf and hard of hearing chemically dependent individuals.
It should be noted
that this study was done using internal data because there
are no other programs in the country with which to make comparisons.
It was therefore necessary to analyze the program and its
results in order to determine how to improve it.
Participants included
in this study consisted of one hundred individuals who completed
chemical dependency treatment at the MCDPDHHI. They were from
numerous states and ranged in age from 17-72. It should be
noted that although there were one hundred subjects in this
study, some did not respond to every question on all instruments.
The reasons for this could include: resistance to the type
of question, failure to understand the question or to ask
for clarification, and/or refusal to disclose the information
being requested.
Each of the one
hundred clients completed these five instruments: 1.) A pre/post
treatment survey that measures attitudinal, behavioral and
knowledge changes that may occur while in treatment; 2. &
3.) Two general information forms that ask a variety of demographic
questions; 4.) A client satisfaction survey; and 5.) A follow-up
questionnaire completed through an interview between staff
and former clients after discharge.
Four research questions
were utilized. These four research questions were: 1. What
is the significance of the demographic variables? 2. What
are the desired treatment outcomes? 3. What is the relationship
between selected demographic variables and the array of desired
treatment outcomes? 4. What is the analysis and evaluation
of the data gathered and what recommendations result from
this study?
Description of
the study
The study included
a description of predictor variables, including deafness characteristics,
demographics, treatment readiness indicators, pro-recovery
attitude, background information, consequences in the major
life areas (i.e. social, family, legal, financial, and school/work)
and referral information. Outcome variables of interest included
drug/alcohol status, employment/school status, living arrangement,
psychosocial improvements, psychosocial assets, status of
problems now, and aftercare participation.
The research investigated
the relationships of client, treatment involvement and treatment
outcome variables in the hope that this knowledge would assist
in outcome predictions and assist in future treatment modifications.
This research ascertained if a positive change occurred within
the first, third, six, or twelve months after the completion
of treatment related to a client's health/mental health status,
vocational/school status, functional living, or ability to
reduce or stop the use of alcohol/drugs. The results were
broken down into short-term (first and third month follow-up
calls) and long-term (six and twelve month follow-up calls).
The goal of the study was to determine which client and treatment
variables had the highest rate of predictability of the desired
array of outcomes. Information gathered in this study was
used to assist in the further development of effective treatment
programs for this population.
Initially, a variety
of tests were run using independent and dependent variables
with special emphasis on follow-up information gathered on
a one, three, six and twelve month basis. Because the sample
consisted of only 100 subjects contacted at either one, three,
six or twelve month intervals of time, the tests were run
a second time and data were clustered into short term(one
and three month follow-up data) and long term( six and twelve
month follow-up data).
The independent
variables were broken down into categories and the breakdown
consisted of overall demographics, overall communication/deafness,
overall treatment/aftercare, short-term demographics, short
term communication/deafness, short-term treatment/aftercare,
long-term demographics, long-term communication/deafness and
long-term treatment/aftercare.
The five dependent
variables examined include follow-up measures of general improvement,
abstinence, alcohol use, marijuana use and aggregate drug
use. General Improvement was measured as a composite of the
following four questions taken from the follow-up survey.
1.) "I have less problems now as compared to before I
entered treatment;" 2.) "I have less family problems
now as compared to before I entered treatment;" 3.)"I
have less money problems than before I entered treatment;"
4.) "I have better health now than before I entered treatment."
The dependent variables
were collapsed into two categories: 1.) General Improvement
and 2.) Abstinence. Abstinence was thought to encompass variables
dealing with drug and alcohol use, since the overall outcome
goal was abstinence from all use. Therefore, analyses of general
improvement and abstinence were emphasized.
Limitations of the Study
This study represented
the first known effort nationally to examine outcome data
of deaf and hard of hearing individuals who have successfully
completed an inpatient chemical dependency treatment program.
As with any such initial study, there are inherent limitations
existent that the investigator must identify and address.
The first limitation of this study is that it was based on
internal data only since no comparable chemical dependency
programs were available to use in the comparison. The second
limitation was the relatively small number of individuals
available to use in the research sample since less than 400
persons have been admitted into the program since it began
in 1989. A third limitation was that the five survey instruments
that were used were designed with other purposes in mind than
supporting research of this kind. For example, the research
would have been more definitive if a survey had made a clear
distinction between obtaining employment and going to school
after treatment as compared with some situations prior to
entering the program. A fourth limitation is related to language
limitations of the population in regard to the use of the
follow-up survey. Ideally, the follow-up process should be
completed in a face to face interview using the preferred
communication style of the participant. Because the MCDPDHHI
is national in scope, it was not possible to have all individuals
interviewed in person. The majority of the follow-up surveys
had to be completed via a teletypewriter for the deaf(tty)
and as a result, some of the questions were either not answered
or possibly misunderstood. An attempt was made to contact
referral sources, family members or other individuals who
could provide corroborating data.
Relative Outcome
There were 14 independent
variables that showed statistically significant linear relationships
with respect to general improvement. These variables were:
AA/NA attendance, contact with sponsor, family counseling
attendance, employment status, method of payment, highest
grade completed, recommend program to a friend, return to
the program if relapse, program help you, degree of alcohol
use, degree of marijuana use, degree of other drug use, talk
to friends about sobriety and talk to family about sobriety.
There were four independent variables that showed statistically
significant linear relationships with respect to abstinence.
These variables were: AA/NA attendance, employment status,
talk to friends about sobriety and talk to family about sobriety.
The three variables that were significantly related to both
general improvement and abstinence were: AA/NA attendance,
ability to talk with family and employment status.
Eight independent
variables showed statistically significant linear relationships
between both short and long term data and general improvement.
These variables were: degree of alcohol use, degree of marijuana
use, degree of drug use, attending AA/NA meetings, contact
with sponsor, employment status, method of payment and talk
to family about sobriety.
Four independent
variables showed statistically significant linear relationships
between both short and long term data and abstinence. These
variables were: AA/NA attendance, the ability to talk with
family about sobriety, employment status and time since last
use.
The three variables
that were significant for the short/long term data related
to both general improvement and abstinence were: AA/NA attendance,
the ability to talk to family about sobriety and employment
status.
Therefore, the
variables that were significant for the overall and short/long
term follow-up data with respect to both general improvement
and abstinence were: AA/NA attendance, ability to talk with
family about sobriety and employment status.
Outcome
Taking into account
all drugs(i.e., alcohol, marijuana and other drugs), abstinence
was reported by 36% of the clients at follow-up, while an
additional 15% reported using a single drug less than monthly.
Post-treatment drug use was computed for specific drugs as
well. This analysis was organized around two separate follow-up
client groups: those for whom short-term (three or fewer months)
post-treatment data was collected and those for whom long
term post-treatment (six or twelve months) outcome was obtained.
Alcohol was used more often for both follow-up groups (45.2%
and 55.4%, respectively), compared to marijuana (17.9% and
17%, respectively) and other drugs (23.3% and 15.7%, respectively).
Thus, the majority of nonabstainers at follow-up, regardless
of the time period, preferred using alcohol compared to other
drugs. However, a small but appreciable percentage of clients
were using more than one substance during the post-treatment
period. Another observation from the alcohol follow-up results
is that a significant proportion of nonabstainers reported
weekly or daily use; this level of use was present among 79%
of the nonabstainers in the short-term group and among 45%
in the long-term group. Perhaps the popularity of alcohol
at follow-up is not too surprising; at intake, 60% of the
full sample gave alcohol a preferred drug rating.
As previously indicated,
three predictor variables were significant predictors of abstinence
for either the short-term or long-term follow-up groups: employment
status at follow-up, availability of family to talk to during
follow-up, and AA/NA attendance. Thus, clients were more likely
to be abstinent or using less drugs at follow-up based on
if they were employed, had a family with whom they could talk
to about sobriety and participated in post-treatment services
such as AA/NA.
While there were
only three variables with respect to abstinence that were
determined to be significant, fourteen variables showed statistically
linear relationships with respect to general improvement.
Thirteen of those variables were related to treatment/aftercare
and two were an aspect of the demographic data. Clients report
overall general improvement in their life at follow-up if:
they are in contact with a sponsor, attend AA/NA meetings,
attend family counseling, have friends or family with whom
they can talk to about their sobriety and are employed. Degree
of alcohol, marijuana or other drug use was also determined
to be significant, as was method of payment for treatment,
highest grade completed, if they would recommend the program
to a friend and felt the program helped.
One demographic,
highest level of education, was a significant predictor of
general improvement. Clients were more likely to report overall
general improvement if they had a higher educational level,
as shown by the positive relationship with general improvement.
Generally speaking,
these same independent variables were also significant predictors
for the other outcome measures, such as post-treatment use
for specific drugs and relative improvement.
Variables that
were not significantly related to any of the outcome measures
were the following: preferred drug at intake, gender, type
of education (mainstream vs. residential education,) and the
treatment satisfaction variables (treatment approach, staff
and materials).
Demographic data
indicated that 36% of those admitted to treatment that participated
in this study were on some kind of public assistance and were
not employed or in school. Individuals who were receiving
public assistance were also able to stay in treatment longer.
The number of treatment
days was related to method of payment: Those under public
assistance tended to have a greater number of treatment days
vs. those under private pay who had fewer treatment days (-.4399,
p<.001, n=98). (Approximately 19.4% of the variance is
explained by a linear relationship). The number of treatment
days was related to employment status at follow-up: Employed
individuals tended to spend fewer days in treatment versus
unemployed individuals (r=.2482, p=.008, n=95). (Approximately
6.2% of the variance is explained by a linear relationship).
Those employed
at follow-up were typically ones classified as private pay.
Those not employed at follow-up tended to be under public
assistance (r=.2603, p=.012). (Approximately 6.8% of the variance
is explained by a linear relationship).
Though not significant,
the correlation between type of education (non-mainstream
vs. mainstream education) and deafness onset (early vs. late)
revealed a tendency for those receiving non-mainstream education
to be more likely to have had an early deafness onset; those
who received mainstream education were likely to have had
a later onset (r=.1695, p=.095, n=97). Several studies have
been completed with hearing individuals that have had similar
outcomes to this study. Menaja Obinali(1986) completed a study
in conjunction with Camarillo State Hospitals Alcoholism
Treatment Unit based on factors that contribute to successful
or unsuccessful treatment completion. Findings indicated that
successful completion was related to the following: employment
history, involvement in psychotherapy and environmental milieu
and attendance at Alcoholics Anonymous meetings. Three of
the four factors listed were found to be significant in this
study recently completed with deaf and hard of hearing individuals.
The Camarillo study also found that although not statistically
significant, higher levels of education were associated with
successful completion. Higher levels of education were found
in the study with deaf and hard of hearing individuals to
be related to overall general improvement. A study by George
Vaillant(1988)which included 100 heroin addicts and 100 alcohol-dependent
individuals investigated long-term follow-up as related to
relapse and prevention of relapse in addiction. Findings indicated
that primary factors were: compulsory supervision (parole,
employment), substitute dependence (AA/NA, parole), new social
supports (sponsor, AA/NA) and inspirational group membership(12
step meeting attendance). These results were very similar
to the findings of this study.
Recommendations
The study developed
twelve general recommendations related to chemically dependent
deaf and hard of hearing individuals. Each of these major
recommendations, if implemented, may have a significant impact
on future treatment programs attempting to serve deaf and
hard of hearing individuals. All of the recommendations are
based on the relationship between the overall, short/long
term independent variables listed under the categories of:
typical demographics, deafness/communication demographics
and, treatment/aftercare with respect to the dependent variables
of abstinence and general improvement. The general recommendations
will be listed first, followed by a discussion of each.
The recommendations
consist of both internal and external suggestions. The internal
recommendations focus on: the collection of additional information
from clients during treatment, i.e., a vocational evaluation,
recommendations for improvement of treatment based on the
information learned through this research study and what changes
should occur upon discharge from treatment related to maintaining
abstinence. External recommendations will focus on a broad
spectrum of applicable issues not directly related only to
the MCDPDHHI. It will be noted that there is no discussion
of pre-treatment education level, although the research disclosed
a relationship between education attained and general improvement
after treatment. Individuals entering treatment have completed
such education and this information may be useful in determining
the types of clients that may be more successful in completing
treatment but it is not closely related to the purposes of
this study.
The recommendations
are as follows:
1. Make vocational
rehabilitation a strong component of inpatient treatment and
the aftercare that follows. This could be done by involvement
on a consulting or formal staff basis.
This research has
indicated that there is a strong relationship between abstinence
and employment. This would seem to indicate that there must
be an emphasis on career exploration by individuals while
in treatment and the linkage of vocational rehabilitation
services with treatment. One previous study (Gorski, 1980)
found that up to a third of the disabled individuals applying
for vocational rehabilitation services may be alcoholic. This
supports the need to explore additional linkages with vocational
rehabilitation. This linkage can either be done by hiring
a staff member who is a certified vocational rehabilitation
counselor for the Deaf or by contracting with a consultant
trained in this area. During the final phase of treatment,
the staff should spend time specifically on strategies related
to employment and job readiness skills. The vocational rehabilitation
counselor would be responsible for assessing the individual's
potential related to employment while in treatment and if
they are from the local area, they would follow their case
upon discharge and assist in job training and placement. If
the individual is from out of state, the vocational rehabilitation
counselor would be a liaison with the home community and assist
in accessing appropriate services at time of discharge. Consideration
will have to be given to special arrangements for those that
are from out of state.
2. A curriculum
must be developed that focuses on the importance of employment
and teaches some basic skills related to how to seek, access
and retain employment.
The first recommendation
will not be effective unless individuals in treatment understand
the whole relationship in the work world of securing employment,
holding a job and being satisfied while doing so.
Many of the individuals
who enter treatment are on some kind of public assistance
and not employed. As the demographic data indicates, 36% of
the subjects admitted to treatment were on some kind of public
assistance and were not gainfully employed or in school. This
is a societal issue that needs to be addressed since there
is little if any motivation for deaf and hard of hearing individuals
on public assistance to get off of it. In some situations,
parents and others before them were on public assistance and
it may be a cultural issue. The tendency of our welfare and
assistance programs to financially penalize individuals who
obtain income from jobs, needs to be thoroughly examined.
All of this makes the preparation of the curriculum difficult,
but very important.
3. Departments
of Vocational Rehabilitation in various states need to have
consistent policies which support the need for assistance
during and upon discharge from treatment.
Presently there
is no such consistency and in order for national standards
to be developed, attention must be paid to uniform provisions.
Currently, individuals in some locations are required to demonstrate
a specific period of abstinence ranging from 6 to 12 months,
prior to becoming eligible for vocational rehabilitation services.
This research shows this to be a paradox since abstinence
is related to having employment. Some treatment professionals
would argue that in order for an individual who has successfully
completed treatment and is not employed, to maintain sobriety,
they need to immediately secure work and be involved in a
solid support program. On the other hand, some vocational
rehabilitation agencies won't provide support to individuals
who are chemically dependent because they don't want to place
them on a job and have them relapse. They feel that six to
twelve months of sobriety is necessary to prove that they
can be reliable employees.
4. Training
programs need to be established for vocational rehabilitation
counselors, social workers, chemical health assessors, teachers,
administrators, psychologists and mental health counselors
serving deaf and hard of hearing individuals. This training
should focus on provision of knowledge about the unique considerations
related to this population.
Presently difficulties
are created for the deaf and hard of hearing chemically dependent
population because professionals working with them have had
no training related to substance abuse. This training should
include: chemical dependency assessment, how to recognize
signs and symptoms of use/abuse, prevention strategies, clinical
issues, and the referral process and aftercare options. Staffing
a specialized treatment program such as the MCDPDHHI also
becomes a major challenge because there are few if any trained
professionals in this area who are fluent in sign language.
The research highlighted the need for support services such
as AA/NA meetings. Without proper training, the professionals
serving the recovering deaf and hard of hearing population
will not fully understand the importance of advocating for
this type of service for their clients. It is essential for
cultural identity to be explored as part of the recovery process
in a specialized program serving deaf and hard of hearing
individuals (Myers, 1992).
5. Courses related
to substance abuse and deafness should be required of students
interested in pursuing careers in vocational rehabilitation,
education, administration, social work, psychology, mental
health, ministry, etc. A major career area should be developed
that would provide the opportunity for certification related
to counseling the chemically dependent deaf and hard of hearing
population.
Currently, there
are few if any collegiate training programs for professionals
interested in working with deaf and hard of hearing individuals.
This research indicates the need for strong support systems
related to talking about sobriety with friends/family and
attending self help groups such as AA/NA. Colleges and universities
provide no formal education to those people who will work
with this population related to how to recognize if a problem
exists, the barriers these individuals face and appropriate
tools to deal with them. Such courses need to be offered to
all individuals entering the field of deafness if proper services
are to be provided.
After the courses
have been developed, the method and need for certification
of counselors working with the deaf and hard of hearing chemically
dependent population should be investigated. Deaf counselors
need to be trained and hired at treatment centers for deaf
substance abusers (Rothfeld, 1982). This kind of approach
will foster greater communication and provide positive role
models to individuals in treatment.
6. A hotline
should be created that would be available for Deaf and Hard
of Hearing individuals if they need help in accessing treatment,
self help groups (i.e. AA/NA), other support services or maintaining
sobriety. The phone number should be available 24 hours
a day, toll free, tty accessible and available on a national
basis.
The research indicated
the need for support systems such as AA/NA and friends/family
to talk to about sobriety. There is a serious shortage of
resources available on a national basis to serve chemically
dependent deaf and hard of hearing individuals. Often these
people end up in crisis because of the lack of awareness of
professionals and the deaf community as to how to access support.
The hotline would serve this purpose by providing support
to family members, friends, concerned persons, significant
others and substance abusers. Without this service a number
of the problems disclosed by the research will not be completely
solved even with the recommendations included here.
7. Methods need
to be developed to emphasize the importance of the inclusion
of family members and friends of the subjects in structured
portions of the full treatment experience.
Since the independent
variable of the ability to talk with family about sobriety
is significant, this component needs to be addressed during
treatment. Professionals, caregivers, family members and friends
when trying to ease their own pain, enable the disabled individual
to continue his or her chemical dependency. Family, friends
and other concerned persons encourage the use of alcohol or
drugs believing that this will help the person who is disabled
to socialize, obtain happiness or satisfaction, and perhaps
even feel equal to able bodied people (Schaschl and Straw,
1989). These feelings and behaviors displayed by family members
and friends must be dealt with if the individual is to maintain
sobriety. Treatment programs need to continue to focus on
the importance of finding sober friends to talk to about problems.
One way of doing this is to invite a friend to participate
during family week when family members and significant others
are encouraged to spend one week learning about substance
abuse and engaging in a therapy group with their family member.
Educational information related to Alanon and other support
services available should be provided to an individual's friends
and family during treatment.
8. Additional
information should be provided to subjects related to the
role of a sponsor in their recovery process.
This research indicated
there was a relationship between abstinence and access to
a friend with whom clients could talk about sobriety. In general,
this describes the role of a sponsor in a Twelve Step Program.
However, there is a shortage of recovering individuals who
are deaf or fluent in American Sign Language and appropriate
to be a sponsor. This research was not able to demonstrate
a relationship between abstinence and having a sponsor. This
writer questions whether subjects use their friends in the
same manner a sponsor should be used because of the shortage
and lack of awareness of how to utilize a sponsor.
9. There is
a national need for additional accessible self help groups
such as AA/NA/Alanon, CA, etc.
Feedback during
follow-up indicated that subjects were not attending AA/NA
meetings as consistently during the first six months following
treatment as from six to twelve months. One of the theories
behind this may relate to the ability of some of the subjects
to "white knuckle it" and survive on a "treatment
high". This is typically felt by subjects who become
sober, complete a treatment program and think that because
of all they have learned, they will never use drugs or alcohol
again. They tend to continue with the same relationships,
same friends and same lifestyles. At some point, something
triggers a relapse and they risk falling back into the same
using patterns. This study indicates that once a person has
been out of treatment for six months or longer, it isn't as
possible for them to stay sober if they don't participate
in a self help program such as AA/NA. But it is clear that
there is a need for more accessible AA/NA meetings. Until
there are more available meetings on a national basis, subjects
will not be aware of the positive support and results they
may access at all times. It is difficult for counselors and
service providers in this field to tell their clients they
need to attend twelve step meetings to stay sober, but then
not have accessible meetings in the client's area.
10. There is
a need to establish additional services related to aftercare.
Overall, aftercare
continues to be one of the greatest obstacles in assisting
clients to maintain sobriety and improve their quality of
life. The biggest gap seems to be related to accessing safe
and sober living environments upon the completion of treatment.
This relates to the research findings involving the importance
of having a support system available to maintain abstinence.
Most states have no continuum of service available in this
area. In some states inpatient or outpatient services are
provided, but no long term sober living options are available
for deaf and hard of hearing chemically dependent individuals.
11. Additional
funding through grants and other methods for outpatient treatment,
inpatient treatment, prevention services, aftercare, and sober
living environments should be sought.
With today's economy,
organizations need to be innovative and creative in finding
ways to fund programs for specialized populations such as
for the Deaf and Hard of Hearing. Examples of the continuum
of care needing additional monies are part of this recommendation.
Special attention needs to be paid to grant writing strategies
because they are needed by professionals interested in developing
comprehensive treatment services as reductions continue to
occur at the federal, state and local level, and alternative
funding sources need to be found. Grant writing is recognized
as one important skill to have and training is beginning to
be offered to some professionals to assist them in accessing
funding for specialized services such as those discussed above.
12(a). This
research study should be revised, continued and expanded because
the small number of available subjects may not have completely
validated its' conclusions.
This study consisted
of 100 subjects because at the time the research project was
initiated, there was not a larger number available for inclusion.
The results appear to be significant and may provide support
for future recommendations at the MCDPDHHI and other programs
that may choose to utilize this research. The nature of the
studied population makes it important to have as much information
available as it is possible to obtain. Before making major
changes in current programs such as the MCDPDHHI, or making
recommendations to others who want to duplicate the MCDPDHHI's
efforts, it is necessary to be sure that the conclusions of
this study are valid. One method of ensuring this would be
to propose a replication of this study using a larger sample
when it is available.
12(b) Additional
research, including more longitudinal studies, is also strongly
suggested.
Additional research
is needed in the area of substance abuse and deafness. A national
data base should be established related to demographic and
other appropriate research involving substance abuse and deafness.
Longitudinal studies offer reassurances of reliability which
short-term studies cannot and help to discount the effects
of other present factors of inadequate research.
Final Conclusions
The number of facilities
emerging to meet the needs of deaf and hard of hearing substance
abusers is increasing and existing resources are gradually
attempting to make their services accessible to deaf and hard
of hearing people. The increase in attention being given to
preventive efforts is applauded, and it is hoped that more
and expanded focus in this area will continue. The integration
of community models and public health concepts offers a promise
of a wider perspective. This appears to be a wise approach
to addressing problems of addiction.
Ideally, individuals
who successfully complete an alcohol/drug treatment program
should be able to return to the environment that they lived
in prior to entering a treatment program. However, that environment
must include a sober living option, family/friend support,
professionals trained to work with clients on aftercare issues
and accessible twelve step meetings. There are at least two
problems in achieving this result. One is that the local education
facilities, support groups, counselors, family and friends
vary widely from one part of the country to another. Some
individuals can return to a positive healthy living situation
that is supportive, while the majority of individuals leaving
treatment do not have that opportunity available to them.
Secondly, current laws sometimes inhibit good opportunities
to intervene with these individuals at an early age.
The Mayo Clinic
Health letter(April,1995), discussed the importance of a support
system and being well connected. It found that the more social
ties you have, the better youll feel emotionally and
physically. The article supports the need for people to have
family and friends to talk with as well as belonging to structured
organizations such as twelve step groups. The Mayo Clinic
study conforms with the conclusions reached in this study.
It is interesting
to note that the major conclusions of this research relate
to the environment which the subject enters after leaving
treatment. This is the same kind of discussion that is occurring
nationally in relation to child abuse, juvenile delinquency,
teenage violence and similar problems. It appears that there
is a belief that it will not work to return an individual
with problems to the same situations that existed prior to
their difficulties. Children who have been abused should not
be returned to the abusing adults. Teenagers who have been
violent should not return to their parents and old neighborhoods
and instead should go to a different more supportive location.
Similarly we have found that chemically dependent deaf and
hard of hearing individuals need to be in a supportive environment
after treatment in order to be successful in their recovery.
This research appears
to demonstrate that pre-conceived opinions that deaf and hard
of individuals are at greater risk of addiction than the general
population may not be correct. When deaf and hard of hearing
individuals receive the same treatment as hearing persons,
outcomes appear to be the same and aftercare needs are similar
and equally important. We will not fairly measure the risk
factor until deaf and hard of hearing individuals receive
the same consideration as hearing persons in regard to prevention,
intervention, accessible treatment and adequate aftercare.
That is not the case today.
Bibliography
Benshoff, J & Rigger,
T. (1990). Substance abuse: Challenges for the rehabilitation
counseling profession(Editorial). Journal of Applied
Rehabilitation Counseling 21(3),3.
Boros, A.,
& Sanders, E. (1977). Dimensions in the treatment
of the deaf alcoholic. Kent, OH: Kent State University.
Boros, A. (1981).
Activating Solutions to Alcoholism Among the Hearing Impaired.
In A.J. Schecter, (Ed.), Drug dependence and alcoholism:
Social and behavioral issues. New York: Plenum Press.
Buss, A., and
Cramer, C. (1989). Incidence of alcohol use by people
with disabilities: A Wisconsin survey of persons with
a disability. Madison, WI: Office of Persons With Disabilities.
Cherry, L.,
(1988). Report on surveys conducted by the Bay Area project
on disabilities and chemical dependency. Belmont, CA:
Coalition on Disability and Chemical Dependency.
de Miranda,
F., and Cherry, L. (1989). California responds: Changing
treatment systems
through advocacy for the disabled. Alcohol health and
Research World. 13(2), 154-157.
Dixon, T. L.
(1987, January/February). Addiction among the Hearing
Impaired. E.A.P. Digest. 41-44.
Ferrell, R
and George, J. (1984). One community's response to alcohol
problems among
the deaf community. Journal of Rehabilitation of the
Deaf.18(2). 15-18.
Gorski, R.
(1980). Drug abuse and disabled people: A Hidden problem.
Disabled USA. 4(2), 8-12.
Greer, B.,
& Jenkins, W. (1990). Substance Abuse among Clients
with other primary disabilities. Rehabilitation Education.
4, 33-44.
Hepner, R.,
Kirsbaum, H. and Landes, D. (1980/1981). Counseling substance
abusers with additional disabilities: The center for independent
living. Alcohol Health and Research World. 5(2).
11-15.
Isaacs, M.,
Buckley, G., & Martin, D. (1979). Patterns of Drinking
Among the Deaf. American Journal of drug and alcohol
Abuse. 6(4), 463-476.
Johnson, S.
& Locke, R. (1978). Student drug use in a school
for the deaf. Paper presented at the annual meeting
of the National Conference on Drugs, Seattle, WA.
Kapp. D.L.,
Clark., K., Jones. J & Owens, P.(1984). Drug and Alcohol
Prevention/Education
with Deaf Adolescents: A Preventative Guidance and Counseling
Program. In G.B. Anderson & D. Watson(Eds.). The
Habilitation and Rehabilitation of Deaf Adolescents.
Wagoner. OK: University of Arkansas Rehabilitation Research
and Training Center on Deafness and Hearing Impairment.
Kearns, G.
(1989, April). A Community of Underserved Alcoholics.
Alcohol Health and Research World. pp. 27.
Kozel, N. &
Adams, E. (1986). Epidemiology of Drug Abuse: An Overview.
Science, 234, 970-974.
Lane, K. E.
(1989, April). Substance Abuse Among the Deaf Population:
An Overview of Current Strategies, Programs and Barriers
to Recovery. Journal of American Deafness and Rehabilitation
Association. 2(4), 79-85.
McConnell,
J.V.(1986). Understanding Human Behavior. The University
of Michigan: Holt, Rinehart & Winston.
McCrone, W.
(1982, Fall). Serving the Deaf Substance Abuser. Journal
of Psychoactive Drugs. pp. 27-47.
McCrone, W.(1991).
Federal Legislative Advocacy for Drug Abuse Prevention
with Deaf and Hard of Hearing Children. In F. White, W.
McCrone, and C. Trotter(Eds.). Proceedings of the Department
of Counseling's Drug Free Schools and Communities National
Training Institute. (pp. 92-105). Washington, D.C.:
Department of Counseling, Gallaudet University.
McCrone, W.
(1994, Fall). A Two Year Report Card on Title I of the
American Disabilities Act: Implications for Rehabilitation
Counseling with Deaf People. Journal of American Deafness
and Rehabilitation Association. 28(2), 1-20.
Myers, L. R.
(1992). Oppression and Identity: The Shame-Addiction Connection.
Proceedings of The Next Step: A National Conference
Focusing on Issues Related to Substance Abuse in the Deaf
and Hard of Hearing Population. (pp. 117-126). College
for Continuing Education, Gallaudet University.
Obinali, M.
(1986). Factors Which Characterized Alcoholics who Successfully
Completed a Residential Treatment Program. (University
of Tennessee, 1985) Dissertation Abstracts International,
46, 4024.
Robert Wood
Johnson Foundation (1993). Substance abuse: The nation's
number one health problem. Princeton, New Jersey:
Brandeis University Institute for Health Policy.
Rasmussen,
G. and DeBoer, R.(1980/81,Winter). Alcohol and drug use
among clients at a residential vocational rehabilitation
facility. Alcohol Health and Research World. 8(2),
48-56.
Rothfeld, P.(1982).
Residential Services for Deaf Alcoholics. In D. Watson,
K. Steitler. P. Peterson. & W. Fulton (Eds.),Mental
Health, Substance Abuse and Deafness. Silver Spring,
MD: American Deafness and Rehabilitation Association.
Schaschl, S.,
& Straw, D. (1989). Results of a model intervention
program for physically impaired persons. Alcohol Health
and Research World, 13, 150-153.
Schaschl, S.,
& Straw, D. (1990, April). Chemical dependency:
The avoided issue for persons with disabilities. Paper
presented at the National Prevention Research and Training0
Conference. People With Disabilities, Phoenix, AZ.
Social Networks:
The company you keep can keep you healthy. (1995,April).
Mayo Clinic Health Letter. 13(4), 7.
Sparadeo, F.
and Gill, D.(1989). Effects of prior alcohol use on head
injury recovery. Journal of Head Trauma Rehabilitation.
4(1) 75-82.
Steitler, K.
A. (1984). Substance Abuse and the Deaf Adolescent. In
G. B. Anderson and D. Watson (Eds.). The Habilitation
and Rehabilitation of Deaf Adolescents. (pp. 125-146).
Little Rock, Arkansas: University of Arkansas Rehabilitation
Research and Training Center on Deafness and Hearing impairment.
Stokoe, W &
Battison, R. (1981). Sign Language, MentalHealth and Satisfactory
Interaction in Stein, L., Mindel, E. & Jabaley (Eds.)
Deafness and Mental Health. Grune & Stratton,
New York.
Sylvester,
R.A. (1986). Treatment of the deaf alcoholic; A review.
New York: Haworth press. U.S. Department of Justice Bureau
of Justice Statistics(1992). Drugs, crime, and the
justice system. Washington, D.C.: U.S. Government
Printing Office.
Vaillant, G.
(1988). What Can Long-term Follow-up Teach us About Relapse
and Prevention of Relapse in Addiction? British Journal
of Addiction, 83, 1147-1157.
Watson, E.,
Boros. A., & Zrimec, G.(Winter 1979). Mobilization
of Services for Deaf Alcoholics. Alcohol Health and
Research World. , 33-38.
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